Hi Caroline
One of the problems with the immune systems of RA patients is that it is constantly changing as a result of the drugs we take and the ongoing disease. Often is the case that after years on a particular drug our bodies are no longer able to tolerate it or it no longer has the desired affect on the disease. RA is forever changing, along with the need for regular observations and updates of treatment.
Last year, after 8 years on methotrexate, I suddenly became neutropenic, (insufficient neutrophils were being produced) and I had to stop the drug. Seven months down the line the RA is still not adequately controlled with alternative meds. I have experienced the same reaction with other drugs, working well for a few years then ... wham, intolerance. After 22 years of RA it's a bit of a downer to feel I am almost back at square one for the nth time, but, one thing I have learned is that we should make the most of the 'controlled' times because we can never be sure of what the future holds.
It certainly sounds like a reaction to your medication and coming off them the only way forward. Have you been offered an alternative? You do need something quickly to avoid possible joint damage, pain and an increase in RA symptoms. RA drugs have come a long way in the last five years and I'm sure there would be something available that would suit you. Have you got a rheumatology appointment soon?
Lyn x
